Happy New Year - 2017
Its been a few months since writing and we have now finished Christmas, my birthday and other celebrations. Mikes transformation has been quite remarkable, he is talking more and walking well with his quad can several times a day. His seems far more motivated now than ever and that is a good thing for all. Less stress on all of us, and hope for me. Winter is tough but I predit this spring he will want out and about.
Right now we are in a routine of breakfast together, either physio or Shiela, then he sleeps in the afternoon which leaves me free to do my thing in the afternoon, then we have dinner and the evening together. Otherwise, he is healthy, went to neurologist who says only movement will clear up the tenderness and the ophthalmologist says his right eye is health and although right now the left eye is mostly blind, it could come back. So there is hope. We are in a not bad place.
I am learning the lesson of day by day, of extreme patience and of the importance of taking care of myself. I have started back at the gym, trying to lose the 20 lbs I have put on these last 20 months.
I still have my days where it is hard, when the loneliness creeps in. Most people don't call unless I initiate it. But I guess that was the same before this happened. I just never noticed it before.
Mike will celebrate his milestone 60th birthday in a few weeks. We have lots to celebrate
So we carry on, day by day, rejoice in the steps and the new words and pray for spring to arrive soon.
Adventures of Lulu
Friday, 3 February 2017
Monday, 26 September 2016
Fade into Fall
Well, here we are saying goodbye to what was a glorious summer, pools down, gardens fading and most of the song birds have gone.
We had a busy and productive month as Mike is doing well and walking more and more with the aid of the ankle brace, both at physio and he is starting to have the confidence to let Sheila and I help him with this at home. He is more determined than ever that he is going to do it.
His speech has not improved much but there are some new words and sentences, his cognition is still very good. We have started to enjoy baseball season and all our shows we used to love are back on. We lead a simple life, but we entertain when we can and try and get out. We have become close to Kathy and Sheldon Adams, he is great to help around the house and Kathy and I share some fun times together.
I have been encouraged by his progress and I am getting the courage to go out more and try and not worry so much. What will be will be. I also found out that a combination of his medications were causing this stomach illness and confusion. Once he got off that his humor and stamina have improved. He is much more motivated and wants to do more.
I would love to report him walking just with his cane by the next blog, that would be news!!
Wednesday, 24 August 2016
More Summer Fun
August has been a fabulous weather month, bittersweet as we both miss camping. Mike continues to progress slowly, both in speech and walking,but not fast enough for my liking. His new pill regime has changed nothing, he still sleeps during the day, which suits me fine. So life continues day by day. I have been getting out more, trying to do more, but it isn't as easy as it sounds.
Monday, 1 August 2016
Steps in the Right Direction
July was a great month for Mike. Not sure if it has been the fabulous weather or the fact the new medication regime is working but there has been great improvement.
First off, his speech has become more clearer and he is saying many more new words and sentences.
He is easier to understand and this was noticed both by Dr. Smyth and Nicole Kolhert, his previous physiotherapist.
Speaking of physio, he has also made great strides in his strength of his body, finding the core and different parts of his body and the latest improvement being able to walk with the aid of a quad cane and a special ankle brace about 10 feet with almost no help. This has been the most exciting and hopeful improvement to date and we hope to build on this.
It has been bittersweet as the weather has been awesome and I know we both miss camping, although we built a deck and I have the pool and have made some good friendships. We have gotten into watching baseball which we are enjoying together. Day by day, moment by moment, one step at a time in this journey.
Tuesday, 28 June 2016
The Start of Year Two
Things seem to be progressing along, slow but sure, the slightest of improvements but improvements never the less. Instead of pain shots the doctor has now changed his medication to wean him off Lyrica and be awake longer. He is more alert and more talking and communication. He is practicing a lot with the quad cane. For the first time, I feel hope. We are going to more things together and now with the nice weather we go out around the development more , getting lots of exercise.
There is certain reason for hope and I hope that in this next year, we see him walking.
I am trying harder to make a life for myself, so I am not so sad all the time. Have reconnected with old friends and with the end of the school year approaching, hopefully we will have more contact with others, as I think this is what is important to his recovery as much as physio
Thursday, 26 May 2016
One Year Later
It's amazing how fast a year can go, yet feel like it's gone on forever. It sums up how I have felt for 366 days. All along, I have blogged about progress and programs and what we went through on a day to day basis and all the little victories, but this blog is of how one adapts to a complete change of life.
I have never been good with change. I have put up with people and situations just so I didn't have to.
I have always been fearful of decisions, and this year I have had to make life altering ones, ready or not, right or wrong. I have second guessed those decisions over and over.
I have learned that everyone,professionals or otherwise has their opinions, but they aren't always right.
I have been disappointed by people I thought would never disappoint me and been surprised at those who have stepped up like never before. I have reconnected with old friends and have been restored by what they have done for me.
I have had to learn to ask for help, which is still hard.
I have swallowed my pride more times than I can count.
I have tried to find the positive, I have tried to grow, I have tried to accept this must be part of a grand plan, a great reason, although I have to trust I may never know that reason.
I have learned to do things I never thought I could. I have learned that there's a solution to every problem.
I have learned I got through a whole year when I thought I couldn't live through one more moment.
I have learned I am strong, and no matter what, I will get through this.
Saturday, 14 May 2016
A Quick and Peaceful End
She lived ninety-two years and ten days. She bore four children, had one miscarriage, and those four children gave her seven grandchildren, who had five altogether. She lived for those children, whether good or bad, had tragedy follow her, but always had a soft place to fall. She was afraid to die, but she was more afraid to live. She was tortured in her own mind, but could use that mind to get what she wanted when she wanted it. She was my mother, and I loved her.
My mother died two weeks ago, after a brief hospital stay, unexpected really, as we had been in this situation before with my mother many, many times. She always pulled through but this time she had had enough, had lost the will to live. She longed to see the daughter she loved so deeply but lost , six years earlier, and my father, the love of her life, who was gone fifty years earlier at the tender age of forty-one. As quoted in Ecclisiastes, there is a time for every purpose under heaven. This was that time.
I had a love-hate relationship with my mother after her mental health deteriorated about thirty years ago, after a lifetime of alcoholism and dependency on those around her. She turned into a bitter, vindictive woman who loved to cause a good fight, or give a good guilt trip. I realize now this was all part of that illness, she had been in and out of mental health facilities but to no avail, it dogged her until she was too ill to play those games and just wanted to lie in bed and wait her turn to die, even though throughout her life, she had many opportunities to live a full exciting life but chose not to. This is the real tragedy of her life. She had excellent physical health, a keen mind and could be humorous and engaging when she wanted to be and when she took her meds regularly. She was sweet as pie to strangers, would give greeting cards and candies to everyone (but us). She would do anything to get a visit, but then when there, the acid tongue and accusations would erupt until you left or were forced to leave. I am sorry these are the memories that stick with me instead of the wonderful childhood memories of family outings, holidays when my father was alive.His death killed something in her also, and her mother came to live with us. Although she welcomed the help with four children to raise and support, I think having her mother there undermined her confidence and authority until she just gave up and drank some more. We never had car, never got to have or go to sleepovers, never any presence at school events or interested in our friends or hobbies. We depended on my aunts and uncles.
My brother left home first, then Nanny died and my mother was free to do whatever she wanted, two years later both my sister and I moved out and married and lived quite far away, there was little interaction with my Mom. Her drinking increased until she was forced by her health to quit. I moved back into my mothers life after my divorce and lived in the same apartment building. Myself, my new husband and April my daughter grew very close to Mom and my sister Maggie who lived six floors below us.
Those were the halcyon years. Happy times, shopping, holidays together, until as life goes, Maggie met a man and moved out, then later moved five hours away and married. Living on her own changed my mother and she started into the games and neediness that became her trademark. I make it sound as if I hated her, I didn't, I did everything and anything I could do to please her, to win her approval and love. I think we may have been just too alike in personality to ever see eye to eye. It was Lorraine she depended on, when we had to transfer her to a retirement home, it was Lorraine who visited daily, took care of her day to day affairs, paid all her attention to her. When Lorraine died suddenly, her whole world came tumbling down.
Our relationship was tenuous from that point forward and sadly, it was mostly out of obligation, that brought me around.Every year from March to May, her three biggies, Lorraine's death, her birthday, which she hated to celebrate, and my father death anniversary, there was either a hospital stay, or a strange illness that would bring the attention she craved. In this last year there were several illnesses and incidents but I had had my own tragedy, my husband had a massive stroke which required me to not leave my home. We barely saw each other, but through my own angst and loneliness I finally started to understand what my mother, of limited mental capacity went through all those years. She lost the power to hurt me so when I did get to see her there was only joy and love and honesty between us.
So when she had this illness again that brought her to the hospital, we all figured she would bounce back once we were all around her and had our attention. But sadly, it was her time, and she went quickly and painlessly, with all of us around her, I was holding her hand, and saw her draw her last breath, felt her last beat of her heart. And there was only love left, a deep abiding love. Always my dear mum, always.
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