Monday, 26 September 2016

Fade into Fall

Well, here we are saying goodbye to what was a glorious summer, pools down, gardens fading and most of the song birds have gone.
We had a busy and productive month as Mike is doing well and walking more and more with the aid of the ankle brace, both at physio and he is starting to have the confidence to let Sheila and I help him with this at home. He is more determined than ever that he is going to do it.
His speech has not improved much but there are some new words and sentences, his cognition is still very good. We have started to enjoy baseball season and all our shows we used to love are back on. We lead a simple life, but we entertain when we can and try and get out. We have become close to Kathy and Sheldon Adams, he is great to help around the house and Kathy and I share some fun times together.
 I have been encouraged by his progress and I am getting the courage to go out more and try and not worry so much. What will be will be. I also found out that a combination of his medications were causing this stomach illness and confusion. Once he got off that his humor and stamina have improved. He is much more motivated and wants to do more.
I would love to report him walking just with his cane by the next blog, that would be news!!



Wednesday, 24 August 2016

More Summer Fun

August has been a fabulous weather month, bittersweet as we both miss camping. Mike continues to progress slowly, both in speech and walking,but not fast enough for my liking. His new pill regime has changed nothing, he still sleeps during the day, which suits me fine. So life continues day by day. I have been getting out more, trying to do more, but it isn't as easy as it sounds. 

I am anxious for Mike to improve so we can do more things. So more hope as summer fades and fall sets in.


Monday, 1 August 2016

Steps in the Right Direction

July was a great month for Mike. Not sure if it has been the fabulous weather or the fact the new medication regime is working but there has been great improvement.
First off, his speech has become more clearer and he is saying many more new words and sentences.
He is easier to understand and this was noticed both by Dr. Smyth and Nicole Kolhert, his previous physiotherapist.
Speaking of physio, he has also made great strides in his strength of his body, finding the core and different parts of his body and the latest improvement being able to walk with the aid of a quad cane and a special ankle brace about 10 feet with almost no help. This has been the most exciting and hopeful improvement to date and we hope to build on this.
It has been bittersweet as the weather has been awesome and I know we both miss camping, although we built a deck and I have the pool and have made some good friendships. We have gotten into watching baseball which we are enjoying together. Day by day, moment by moment, one step at a time in this journey.


Tuesday, 28 June 2016

The Start of Year Two

Things seem to be progressing along, slow but sure, the slightest of improvements but improvements never the less. Instead of pain shots the doctor has now changed his medication to wean him off Lyrica and be awake longer. He is more alert and more talking and communication. He is practicing a lot with the quad cane. For the first time, I feel hope. We are going to more things together and now with the nice weather we go out around the development more , getting lots of exercise.
There is certain reason for hope and I hope that in this next year, we see him walking.
I am trying harder to make a life for myself, so I am not so sad all the time. Have reconnected with old friends and with the end of the school year approaching, hopefully we will have more contact with others, as I think this is what is important to his recovery as much as physio
HAPPY FATHERS DAY


Thursday, 26 May 2016

One Year Later

It's amazing how fast a year can go, yet feel like it's gone on forever. It sums up how I have felt for 366 days. All along, I have blogged about progress and programs and what we went through on a day to day basis and all the little victories, but this blog is of how one adapts to a complete change of life.

I have never been good with change. I have put up with people and situations just so I didn't have to.

I have always been fearful of decisions, and this year I have had to make life altering ones, ready or not, right or wrong. I have second guessed those decisions over and over.

I have learned that everyone,professionals or otherwise has their opinions, but they aren't always right.

I have been disappointed by people I thought would never disappoint me and  been surprised at those who have stepped up like never before. I have reconnected with old friends and have been restored by what they have done for me. 

I have had to learn to ask for help, which is still hard.

I have swallowed my pride more times than I can count.

I have tried to find the positive, I have tried to grow, I have tried to accept this must be part of a grand plan, a great reason, although I have to trust I may never know that reason.

I have learned to do things I never thought I could. I have learned that there's a solution to every problem.

I have learned I got through a whole year when I thought I couldn't live through one more moment.

I have learned I am strong, and no matter what, I will get through this.



Saturday, 14 May 2016

A Quick and Peaceful End

She lived ninety-two years and ten days. She bore four children, had one miscarriage, and those four children gave her seven grandchildren, who had five altogether. She lived for those children, whether good or bad, had tragedy follow her, but always had a soft place to fall. She was afraid to die, but she was more afraid to live. She was tortured in her own mind, but could use that mind to get what she wanted when she wanted it. She was my mother, and I loved her.
My mother died two weeks ago, after a brief hospital stay, unexpected really, as we had been in this situation before with my mother many, many times. She always pulled through but this time she had had enough, had lost the will to live.  She longed to see the daughter she loved so deeply but lost , six years earlier, and my father, the love of her life, who was gone fifty years earlier at the tender age of forty-one. As quoted in Ecclisiastes, there is a time for every purpose under heaven. This was that time.
I had a love-hate relationship with my mother after her mental health deteriorated about thirty years ago, after a lifetime of alcoholism and dependency on those around her. She turned into a bitter, vindictive woman who loved to cause a good fight, or give a good guilt trip. I realize now this was all part of that illness, she had been in and out of mental health facilities but to no avail, it dogged her until she was too ill to play those games and just wanted to lie in bed and wait her turn to die, even though throughout her life, she had many opportunities to live a full exciting life but chose not to. This is the real tragedy of her life. She had excellent physical health, a keen mind and could be humorous and engaging when she wanted to be and when she took her meds regularly. She was sweet as pie to strangers, would give greeting cards and candies to everyone (but us). She would do anything to get a visit, but then when there, the acid tongue and accusations would erupt until you left or were forced to leave. I am sorry these are the memories that stick with me instead of the wonderful childhood memories of family outings, holidays when my father was alive.His death killed something in her also, and her mother came to live with us. Although she welcomed the help with four children to raise and support, I think having her mother there undermined her confidence and authority until she just gave up and drank some more. We never had car, never got to have or go to sleepovers, never any presence at school events or interested in our friends or hobbies. We depended on my aunts and uncles.
My brother left home first, then Nanny died and my mother was free to do whatever she wanted, two years later both my sister and I moved out and married and lived quite far away, there was little interaction with my Mom. Her drinking increased until she was forced by her health to quit. I moved back into my mothers life after my divorce and lived in the same apartment building. Myself, my new husband and April my daughter grew very close to Mom and my sister Maggie who lived six floors below us. 
Those were the halcyon years. Happy times, shopping, holidays together, until as life goes, Maggie met a man and moved out, then later moved five hours away and married. Living on her own changed my mother and she started into the games and neediness that became her trademark.  I make it sound as if I hated her, I didn't, I did everything and anything I could do to please her, to win her approval and love. I think we may have been just too alike in personality to ever see eye to eye. It was Lorraine she depended on, when we had to transfer her to a retirement home, it was Lorraine who visited daily, took care of her day to day affairs, paid all her attention to her. When Lorraine died suddenly, her whole world came tumbling down.
Our relationship was tenuous from that point forward and sadly, it was mostly out of obligation, that brought me around.Every year from March to May, her three biggies, Lorraine's death, her birthday, which she hated to celebrate, and my father death anniversary, there was either a hospital stay, or a strange illness that would bring the attention she craved. In this last year there were several illnesses and incidents but I had had my own tragedy, my husband had a massive stroke which required me to not leave my home. We barely saw each other, but through my own angst and loneliness I finally started to understand what my mother, of limited mental capacity went through all those years. She lost the power to hurt me so when I did get to see her there was only joy and love and honesty between us.
So when she had this illness again that brought her to the hospital, we all figured she would bounce back once we were all around her and had our attention. But sadly, it was her time, and she went quickly and painlessly, with all of us around her, I was holding her hand, and saw her draw her last breath, felt her last beat of her heart. And there was only love left, a deep abiding love. Always my dear mum, always.

Thursday, 5 May 2016

A Stressful April (end of month eleven)

Well the adage, "You get what you pay for" certainly applied to our experience at Bruyere rehab. He got his initial assessment as possibly taking some steps by the end of the 10 or 20 sessions. Well it turned out to be 9 sessions and no closer to walking. This, in my opinion was due to the fact that he had three different therapists who all had different ideas about treatment. Needless to say, at the end they said he didn't qualify for the extra lessons. So that's the end of them. Back to Neurologics where I believe he will continue to do well. Paratranspo was an interesting experience, cheap , terribly inefficient  but very handy and I didn't have to drive downtown. We sure met some interesting people.
I got to have nine sessions of therapy, which was helpful. So the hope continues as we go into the anniversary month, I can't believe it's almost a year since this happened. His speech is improving a lot, he is happy and healthy, and has accepted the fact he will never drive and must sell the truck. We had some social occasions as we celebrated Aprils birthday and Easter and one family gathering. The shower got finished, which he loves and finally the weather is improving.
 ,




Sunday, 3 April 2016

Marching to a new tune (end of month ten)

Been a busy month, it seems time is flying by, I have noticed the speech therapy has improved his speech more, but with the apraxia, he may never get better with muscle control he needs. I have no trouble understanding what he wants, but that doesn't mean his speech has improved that much. Lots more spontaneous sentences. Our plan to go to Janet full time for physio got derailed as Mike began his physio at Bruyere, (our free sessions) on March 21. So we will see how that goes. I am getting a bit annoyed at the slow pace of private therapy. The shower Steven promised Mike for his birthday got built and has made a great improvement to Mikes life, he enjoys it. Although we finished speech at Bruyere, we couldn't get into the program at the Apasia Center, I am not disappointed as I think it will be a waste of time. He still practices with the laptop.
The weather has improved some, days are getting longer. I am slowly getting stuff done around the house and have been getting out more and trying to get back to the gym.  Mike had his shot on the 9th, hopefully will help his progress. I am more stressed out than ever as decisions have to be made soon, Doctor put me on anti depressants, so far they haven't kicked in.
Hopefully, my goal for month eleven is he will be beginning to walk with a quad cane and I am slowly trying to get him to do more things around the house and get out more as we start to get into some good weather.

Saturday, 27 February 2016

Molasses in January (end of month nine)

It seems like progress is slower moving than molasses in January, as we limp into February and the end of another month is upon us. 
It seems there is a lot of background work to this physio, before actual results are seen. Janet, the Monday girl, has got him on the treadmill and bike and it seems his quad is getting stronger, we had a problem with dizziness, so when we went to the doctor on the 12th, he took him off the blood pressure medication, which seem to have helped.
Nicole, the other therapist brought in an electronic stimulator to put on every day on the leg to stimulate the muscles. She also is trying to get him to stand for 2 minutes 5 times a day, but he does not seem to want to do it that way. There's no changing his stubbornness so I don't even try. She has got good progress with him walking almost unaided with the hemi and she has got his arm bending and doing more. She feels another 3 months will make a big difference to his walking. let's hope she is right.
Speech therapy is interesting as I find one therapist more effective than the other. We only have six sessions left, I can hardly wait to stop going there as I find it tiresome. However, he is making progress and there has been lots of new words and phrases. Everyone who has come in contact with him has noticed the difference, although he still cannot say my name, a huge annoyance.
There has been lots of social activities, we ended up with three birthday parties, one with his family which he got to see his mother again. He was happy about that. His brother promised to make him a shower stall out of my downstairs closet, I'm sure he will enjoy that. He still sleeps a lot and the trips are taxing on his system. I am also totally exhausted and discouraged that there is not much more progress, I can't believe it's been nine months of this. I am not any more stable or accepting, trying to use the chat group as support, have not got to the gym nearly as much as I need, I am gaining weight and feeling sluggish and depressed. I am anxious to have better weather, I feel trapped during these therapies as it is a day eater and energy drainer. I have yet to find my joy.
So I am hoping, going into month ten, some changes like better speech, switching to having Janet his full time therapist and more mobility will be in order as we move into longer days.

Thursday, 28 January 2016

Right In the Thick Of It ( end of month eight)

 A really busy month, new experiences, celebrations and the joy of Para-Transport have been the highlight of this period. 
Christmas came and went as it does, had a different configuration as April and company had to come here instead of us there, Sandy and Mike brought us to Steves for the usual celebration, with the addition of the two new great nephews and Mike finally being able to see his mom after the last month of her illness. It was a pleasant time, late night but restful New Year, we did ring in 2016, by ourselves as April seemed to be avoiding me and Maggie gone on her trips. I had a kind of late New Year, early birthday celebration on the 2nd of January. We finally got some snow after Christmas, a big dump and then some cold weather which resulted in my car battery dying as we were leaving for therapy.Luckily Paul Leduc saved the day and gave me a boost and I got it replaced while Mike was in therapy.
January fifth we started speech therapy at Elizabeth Brueyere (EB) and had our first paratranspo ride.
It is certainly cheap and easy but can be challenging. Decided to take it to physio also. 
Speech therapy sucks but it is producing results or its just co-incidence, lots and lots more speech and I found more cognizance. Mike loves the para and getting out. He is happy all the time. So our pattern of four day therapy has begun, very tiring for all concerned. I have reconnected with some old friends, and on the Weekend of the 9th, Maggie and Luc were down for the weekend as April threw me a huge surprise birthday party. Mike was in heaven, seeing all of our friends and family. 
People are noticing the speech difference, got to have a Jack weekend at the end of this period.
I cannot believe how the time has flown. I have finished with the therapist for myself and am getting a bit stronger, more accepting, but things still throw me off. My support group has been a lifesaver and I have started to go out more, leaving Mike here alone. I plan to cut out the afternoon respites so I can have more freedom. Nicole will be trying some new techniques as they are getting movement in the quad and other areas, but still not quite able to walk unaided with the cane or hemi, but maybe next period I will have good news to report on that front. Keeping my fingers crossed.